About Us

People meeting around a table
about us

Who Are We?

ARMS-Hub is a network consisting of people living with Alcohol-related Liver Disease (ArLD) and their carers, healthcare professionals with expertise in the area, and those from the community and voluntary sector who support people with ArLD.

Why is this important?

The British Liver Trust published statistics on ArLD until 2018 and it was observed that there was a 4-fold increase in deaths due to liver disease from 1970 up until 2018 in the UK. In comparison, the trend for other chronic diseases such as diabetes, cancer and heart disease observed a decline in the past 50 years.

The UK Health Security Agency labelled Liver Disease as “a silent killer”, as most people with cirrhosis are only diagnosed at a late stage. In addition, one in four people diagnosed with ArLD in hospital die within 60 days.

However, although Liver Disease causes more than 27 deaths a day in the UK, studies show nine out of 10 cases of liver disease could be prevented.

Despite the significant increase in death rate and Liver Disease being a major cause of death in the UK, there are still very few studies and little investment in ArLD research. In this project we want to explore the barriers for that:

  • Self-stigma – impacts early detection and intervention
  • Public stigma – perceptions around ArLD may influence allocation of industry and non-commercial funding
  • Complexity of the condition – needs a multidisciplinary approach (hepatologists, addiction psychiatrists, alcohol nurses, allied health professionals and community workers)
  • Little research in non-hospital settings, participation of non-medical HCPs and involvement of community services and the voluntary sector

How are we going to do it?

We will recruit people with ArLD from different socioeconomic backgrounds and communities, using Patient support groups / charity and voluntary sector organisations, community services and partnering with British Liver Trust. This will allow to design future research studies with inclusion in mind.

We will also include doctors, nurses, allied health professionals and community workers from sites of low recruitment to ArLD studies with higher-than-average hospital admissions. Through workshops, Action learning sets and a Mentorship programme, we aim to understand barriers and facilitators to research engagement and increase knowledge of ArLD research and how to get involved.

People discussing in front of a laptop.

Our end goal is to use group discussions to develop new research questions and ultimately increase and improve ArLD research.